@article{oai:hsuh.repo.nii.ac.jp:00006779,
 author = {西村, 歌織 and 唐津, ふさ and 佐々木, 栄子 and 野川, 道子 and NISHIMURA, Kaori and KARATSU, Fusa and SASAKI, Yoshiko and NOGAWA, Michiko},
 journal = {北海道医療大学看護福祉学部紀要},
 month = {},
 note = {P(論文), <目的>「神経難病患者の療養生活の受けとめ尺度」を開発し、その信頼性と妥当性を検証することを目的とした。本研究における「受けとめ」とは、神経難病によってもたらされた状況や問題に対する認知や情動的反応と定義した。<方法>インタビューに基づいて、24項目5件法の質問紙を作成・郵送し、難病患者243名から有効回答が得られた。統計的に不適切な項目を除外し、因子分析を行った。<結果>因子分析の結果、最終的に16項目4因子が精選され、「主導権の喪失」、「病気の脅威」、「疎外感」、「希望の喪失」と命名された。信頼性はCronbach's α係数(0.86)と折半法のSpearman-Brownの信頼係数(0.82)によって確認した。また妥当性については、難病患者に共通の主観的QOL尺度、コーピング尺度、不確かさ尺度によつて確認された。<結論>以上の結果から、本尺度の信頼性と妥当性がおおむね確保されており、実用可能な尺度であると判断した。, <Objective> This study aims to develop a scale to measure the emotional state of patients with intractable neurological diseases and to examine the reliability and validity of that scale. "Emotional state" is defined as "awareness of problems brought about by the intractable neurological disease and emotional reaction to such problems." <Method> Based on a qualitative study, we developed a multiple-response questionnaire consisting 24 questions, each question having five choices. Questionnaires were completed and returned by 243 of the 388 survey subjects. Their responses were subjected to factor analysis, which statistically identified 16 appropriate questions. <Results> Factor analysis of responses to those 16 questions identified four factors : "loss of control," "threat of disease," "sense of alienation" and "loss of hope." Reliability was confirmed by Cronbach's a coefficient (0.86) and by the reliability coefficient of the Spearman-Brown split-half method (0.82). Validity was confirmed by comparison with subjective QOL scale for patients with intractable diseases, coping scale, and uncertainty scale. <Conclusion> The reliability and validity of the scale are satisfactory, and the scale was judged to be practicable.},
 pages = {37--47},
 title = {神経難病患者の療養生活の受けとめ尺度の開発},
 volume = {14},
 year = {2007}
}